THIS IS OUR LOCAL ISSUE
The Specialty Care Programs funds have been distributed in previous years through a state procurement process known as a Sole Source request. This ensured that if the hemophilia line item was in the state budget, all 7 hemophilia treatment centers in Pennsylvania received state funding. This will end on June 30, 2020. In its place is a new grant process called Request for Applications (RFAs). The RFAs will use a regional approach, based the on the Pennsylvania HealthChoices five regions. Problems with this model include:
This one-size fits all approach that the Department of Health is requiring for all specialty care programs clearly doesn’t work for hemophilia and will only jeopardize our HTCs funding. Lost funding can result in staff positions being eliminated, which will result in loss of comprehensive care.
We are asking the General Assembly to keep the Hemophilia Program as a separate line item at the current fiscal year amount of $959,000. In addition, we request that the funding continue to be distributed, as in previous years, to all seven hemophilia treatment centers in Pennsylvania. Here are more resources that you can download on our site:
Be sure to let us know the results of your call and if you sent a letter. Provide us with as many details as possible. Please email or call us at 610-770-5215 or 610-883-3266.
Our primary concern is, and has always been, the health and wellness of the people and community we serve. We appreciate your understanding during a very dynamic situation. We will be in touch in the coming months with updates on when we can start to schedule home office visits with legislators.