The Power of Community brings together individuals and families affected by bleeding disorders, healthcare professionals, advocates, researchers, and community leaders for meaningful conversations that educate, inspire, and connect.
Whether you’re living with a bleeding disorder, caring for someone who is, or simply want to learn more, we invite you to join the conversation.
Episode 2: The Two Non-Negotiables with special guest Bill Jamison
Our latest guest is Bill Jamison, a longtime member of the bleeding disorders community who has lived with hemophilia for more than seven decades. Bill sat down with our host, Executive Director Sarah Pilacik, to share his remarkable journey, reflect on generations of advocacy, and discuss two essentials for people with bleeding disorders: access to knowledgeable care and a way to pay for it.
Episode 1: The Power of Community with special guest Pat Johnson
Our first guest is Pat Johnson, a long time member of the bleeding disorders community. Pat sat down with our host, Executive Director, Sarah Pilacik to share her personal stories.