Women and Girls

Victory For Women

Victoryforwomen.org celebrates the voices of women in the bleeding disorders community. It’s a place for you to share your creative expression of all kinds: photography, blog posts, stories, poems…whatever you feel captures you. A place where women in the community can express themselves, ask their questions, share their challenges, and above all, celebrate the victory of standing up and being heard.

Victory for Women is part of the  National Hemophilia Foundation’s health initiative that creates and provides support, education and resources for women and providers in the bleeding disorders community.  The main goal is to address critical issues and ultimately improve quality of life for women in the community.  All Victory for Women programs and content are developed and/or reviewed by our Victory for Women Taskforce, which is made up of both consumers and providers.  We can’t wait to hear from you! Learn more on the website: www.victoryforwomen.org

Blood Sisterhood

Whether you have a bleeding disorder diagnosis or are seeking one, you are welcome. Take advantage of the opportunity to connect with community members across the country. You will find a community of strong self-advocates. Blood Sisterhood is for anyone hoping to learn from others, share experiences, and find peer-support network. Join Today at: https://www.hemophiliafed.org/join-blood-sisterhood/ This group is part of Hemophilia Federation of America (HFA).

Foundation for Women & Girls

In 2010, the Foundation for Women & Girls with Blood Disorders (FWGBD), a non-profit 501(c)3 organization, was launched to serve as a single site, a single source where physicians and healthcare providers can obtain information. Provider education, across disciplines, will be the focus of the Foundation. This will benefit women and girls by educating their providers.

The Foundation is dedicated to achieving the correct diagnosis and treatment of blood disorders and accompanying reproductive problems in women and girls with von Willebrand disease (VWD), other factor deficiencies, thrombophilias, sickle cell disease (SCD), hemoglobinopathies, immune thrombocytopenic purpura (ITP) and anemias. FWGBD is an innovative organization that will build the education resource base in these important areas.

Other Resources for Women with Bleeding Disorders

  1. Period Product Support for Women with Bleeding Disorders  
  2. Women’s Groups! Link to Women’s Group Interest Form
    Please complete this form if you are interested in being on a list to know when the women’s groups will be meeting!  You are not committing to attending these meetings by completing this form, but are agreeing to receive emails from the leaders of the group. These groups will be for women 18+ who have a bleeding disorder or care for someone with a bleeding disorder. 
  3. Please complete this form if you have an OBGYN who provides the comprehensive care and understanding which you require for your or your daughters’ bleeding disorder! We would like to know the providers in PA who are taking great care of our community. Link to form