Advocacy Ambassadors are volunteers in a leadership position responsible for helping to establish and build a strong grassroots network of bleeding disorders advocates within Pennsylvania. The goal will be to help increase awareness of Hemophilia, von Willebrand disease, and other factor deficiencies and the challenges persons affected and their families face. Ambassadors serve as liaisons between the Pennsylvania Bleeding Disorders Foundations and the public, state agencies and officials working towards improving the quality of life of individuals and their families who are affected by bleeding disorders. Both Foundations are committed to our volunteer’s engagement and contributions to the bleeding disorders community. We are committed to providing a worthwhile and impactful volunteer experience through the Advocacy Ambassador Program.
Members of the Pennsylvania Bleeding Disorders Foundations Advocacy Ambassador Program are part of the hundreds of bleeding disorders community members throughout the nation working towards improving the lives of individuals with Hemophilia, von Willebrand disease and other rare bleeding disorders and assuring their access to affordable care and treatment. The opportunity to be an Advocacy Ambassador enables you to:
Advocacy Ambassadors are volunteers interested in helping to lead our state’s grass root advocacy efforts and promote the importance of becoming an advocate within our community. They will participate in the following in-person and online activities:
Advocacy Ambassadors will be asked to commit to one calendar year. They may remain part of the Ambassador program as long as they desire, proving they are active ambassador members and represent the Pennsylvania Bleeding Disorders Foundations in a respectful and positive way. Ambassadors will be asked to join quarterly conference calls to receive any training, education, as well as up-to-date news and information on campaigns, issues, and progress of the work. Ambassadors may be asked to do some travel to events within the state.
*In order to serve as an Advocacy Ambassador, individuals may not be employees, agents, or representatives of a pharmaceutical company, medical device manufacturer, pharmacy benefits manager company, home care, or any other organization generally identified as “industry,” nor may they serve on the board of directors of any such company.
For more information contact info@epbdf.org or 610-770-5215, or 610-883-3266.
Town
County
Michelle Bennage
Elizabethtown, PA
Lancaster
Marisa Ferger
State College, PA
Center
Lorie Kerstetter
Lititz, PA
Lancaster
David Melendez
Philadelphia, PA
Philadelphia
Jessica Neumann
Center Valley, PA
Lehigh
Chris Ramsey
Bryn Mawr, PA
Delaware
Melanie Rosen
King of Prussia, PA
Montgomery
Allison Sandford
Thornton, PA
Delaware
Sara Serrano
Milford, PA
Pike
Amber Szagola
Levittown, PA
Bucks
Kathryn Szagola
Levittown, PA
Bucks
Samantha Tomascik
Levittown, PA
Bucks
Joseph Butler
Red Lion, PA
York
Frank Lentini
Harrisburg, PA
Dauphin
Joe Pileri
Philadelphia, PA
Philadelphia
Victoria Selinsky
Delta, PA
York
Everett Upton
White Haven, PA
Luzerne
Sherry Upton
White Haven PA
Luzerne
Constance Williams
Dover, DE
Kent